Today, I’m sharing my experiences with ocular rosacea on a relatively good eye day. I can actually manage to look at a computer screen for longer than just a few minutes. I’ve learned to embrace the productive moments while finding comfort during the tougher times with ice packs and a good podcast.
My journey with ocular rosacea began about 18 months ago when I started feeling discomfort with my contact lenses. After wearing them for two decades, I suddenly found myself having to cut back on wear time until I couldn’t tolerate them at all. Initially, my optometrist diagnosed me with dry eye, but it wasn’t until I visited a specialized clinic in Toronto that I received my definitive diagnosis: ocular rosacea coupled with meibomian gland dysfunction. The tiny blood vessels along my eyelids indicated rosacea, which caused my glands to stop producing the oily layer of tears. Without this crucial top layer, my tears evaporated almost immediately.
The symptoms of dry eye can be intensely frustrating, but the flare-ups from rosacea are what truly incapacitate me. During these episodes, I deal with photophobia (sensitivity to light), and my eyelids can feel like sandpaper. Blinking or looking at my phone becomes painful, and driving is out of the question. While some individuals experience noticeable redness, my eyes often appear completely normal.
I’ve explored numerous treatments for ocular rosacea, but it remains a chronic condition. Standard initial treatments include oral antibiotics (which did not help me), topical steroids (which led to significant rebound inflammation), and prescription anti-inflammatory eye drops such as Restasis and Xiidra. After seven months on Restasis, I’ve noticed about a 10-15% improvement in my symptoms.
I’ve also tried various in-office treatments, including Intense Pulsed Light therapy. While these treatments may initially exacerbate my condition, I believe they have provided some marginal benefits. Additionally, I have experimented with elimination diets, dietary supplements, hot compresses, and lid hygiene. I have pursued most of the treatments available in Canada, many of which are not covered by insurance. After spending thousands of dollars, I still seek the right combination of therapies to regain full functionality. Despite the ongoing flares, I hold onto hope that I’ll find relief someday. My husband often reminds me, “higher highs and higher lows are the goal,” a stock market metaphor that resonates with my situation.
This condition has certainly impacted my mental health. During flare-ups, I often feel anxious, fearing that the discomfort will last indefinitely. Conversely, when I’m feeling well, I’m grateful but also filled with resentment. Why is this happening to me? Will I ever be able to wear contacts and makeup again? This may seem superficial, but as a singer/songwriter, not being able to wear makeup during performances or promotional appearances poses a significant challenge. I also worry about whether my condition will stabilize enough for me to make professional commitments.
I recognize how fortunate I am to have a supportive partner with a stable job. He has been my rock throughout this ordeal, helping me manage our two young boys when I’m bedridden with ice on my face. We have the means to access treatments, and for this, I feel incredibly lucky.
If you’re experiencing discomfort in your eyes or symptoms of dry eye, don’t overlook it. Consult your eye care professional. If left untreated, those valuable meibomian glands can atrophy and be lost forever. If your eyes are healthy, cherish them! Maintain good hygiene by washing your face, removing makeup, avoiding sleeping in contacts, and keeping your brushes clean (I say this with love)!
To anyone dealing with ocular rosacea or any other chronic invisible conditions, I see you. I empathize with your pain. Together, let’s learn to navigate the ups and downs, take deep breaths, practice self-love, and hold onto hope for brighter days ahead. For more insights and support, check out this blog post, or visit Intracervical Insemination for authoritative information. For excellent resources on pregnancy and home insemination, visit Womens Health.
Summary:
Ocular rosacea is a challenging condition that affects both physical comfort and mental well-being. With various treatments available, finding the right combination can be daunting. Acknowledging the struggle and seeking support is essential. If you’re facing similar issues, know that you’re not alone, and it’s vital to care for your eyes.