Autism is often misunderstood, with many assuming there’s a specific appearance that defines it. However, the truth is that autism varies widely from person to person, affecting social interactions, sensory perceptions, and overall behavior in unique ways. This is something I, Sarah, can personally attest to. As someone with both Autism Spectrum Disorder and ADHD, I often face disbelief regarding my diagnosis.
People frequently tell me, “You don’t look autistic,” or “I know someone with autism, and they don’t act like you.” These comments can be frustrating, especially when I try to explain my experiences. The misunderstanding usually boils down to appearances; for instance, I enjoy dressing up and applying makeup, which leads some to overlook my autism. Sadly, many individuals with similar diagnoses feel their own experiences are dismissed because they don’t fit a stereotype.
I received my autism diagnosis at 20, a result of years spent navigating a world that felt overwhelming and confusing. As a child, I was often placed in situations where my differences stood out. I struggled with basic academic skills and social interactions, leading teachers to suspect I had dyslexia. They suggested social skills training, yet the idea that I might be on the autism spectrum seemed to escape their consideration.
Throughout my childhood, distractions plagued my ability to concentrate, forcing me to sit away from windows and other stimuli. Despite attending an Irish school for four years, I found myself unable to grasp the material, and I was exempted from learning a foreign language. Friendships were few; I often relied on my sibling for companionship, enduring bullying and exclusion due to my quirks and misunderstandings of social norms.
In the workplace, I found myself in a revolving door of jobs, each lasting no more than a few months. My efforts were often met with criticism regarding my communication skills, awkward demeanor, and lack of eye contact. Employers would frequently suggest that customer-facing roles were not suitable for me, leaving me feeling defeated despite my hard work.
Academically, I struggled to keep up, even in the most basic classes, and was placed in a program designed for immediate employment rather than university. Despite my challenges, I worked diligently and earned several awards for my efforts. It felt as though I was destined to fail, but with the right support, I’ve made strides toward achieving my academic goals. Now, as I enter my second year of university, I still face hurdles, but I have gained valuable tools to help me navigate them.
Sensory sensitivities are another facet of my autism. Everyday sounds can become overwhelming, prompting me to wear earplugs at night to block out disturbances. Bright lights can strain my eyes, and I often need fresh air to combat stuffy environments. Social outings can be taxing; loud music frequently drives me to leave early, as I feel overwhelmed by the experience.
I also engage in stimming behaviors, which I typically reserve for home. One of my calming techniques is rocking back and forth—a habit I developed in infancy. Special interests, like my current fascination with technology and Steve Jobs, often dominate my conversations. I invite others to engage with me on these topics; it’s a safer space for me to express myself.
If you ever find yourself thinking that someone doesn’t “look” autistic, remember that autism manifests in many ways. Understanding and acknowledging the diversity of the spectrum is crucial. We all have unique challenges and characteristics, and recognizing this can foster a more inclusive environment.
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Summary
Autism is a spectrum disorder that presents differently in each individual. Misconceptions about its appearance can lead to misunderstandings that affect those who are diagnosed. Personal experiences illustrate the diverse challenges faced by individuals with autism, including social interactions, sensory processing, and academic difficulties. By fostering understanding and awareness, we can create a more inclusive society.