Parents of Children with Disabilities Feel Neglected by Their Schools

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In the early spring of 2020, our society faced unprecedented challenges due to the pandemic. While essential services like hospitals and grocery stores remained operational, schools were caught off guard and unprepared for such a significant disruption.

Schools and educators are viewed as vital to our hopes for a brighter future for our children. But what happens when they are ill-equipped to handle emergencies like a pandemic? As a parent of two school-aged children, I can attest that this period has been a steep learning curve for everyone. However, many families, particularly those with children who have disabilities, found the experience to be significantly more challenging.

Many of these students rely on specialized resources that are often included in their Individualized Education Plans (IEPs). Unfortunately, these plans are primarily designed for in-person instruction, and many essential activities simply could not transition to an online format.

For parents who suddenly became part-time educators, the experience was particularly daunting, especially for those of children with disabilities. Balancing parenting and teaching proved to be an overwhelming task. One parent, Sarah, whose son has an intellectual disability, expressed her frustrations: “I just watched my child not learn and regress.” Similarly, another parent, James, whose daughter is deaf and requires additional support, stated, “He needs so much more just to keep up with his peers.”

The difficulties faced by parents are not a reflection of their commitment or that of the teachers. A special education teacher in the Midwest shared that access to technology, internet, and food became major obstacles for families.

Given that special education is partly funded by the federal government, there is a pressing need to increase funding to ensure all students have access to the necessary resources—even in emergencies. The pandemic highlighted the existing disparities, with students with disabilities disproportionately affected. Even before 2020, the gap between the services these students required and what was provided was alarming.

Founded in 1975, federal guidelines like the Individuals with Disabilities Education Act (IDEA) aim to ensure every child receives a quality education. However, the reality is far from this ideal. The federal government is supposed to cover 40% of the costs associated with special education, but in 2020, they only funded 13%, the lowest in two decades. This failure to meet commitment raises serious questions about how schools can effectively support students with disabilities.

While I typically avoid political discussions, it appears that the current administration has recognized the urgent need for change. The U.S. budget for the 2022 fiscal year proposes an increase of $2.7 billion for IDEA funding—something that is long overdue.

Education is the backbone of our society, and quality learning experiences should be guaranteed for all children, regardless of their unique learning needs. It is imperative that lawmakers listen to the concerns of parents and educators advocating for children with disabilities and follow through on their promises for improved educational quality.

To the educators, your dedication is appreciated. It is never easy to engage students in learning, especially when it isn’t related to their favorite video games. But your unwavering commitment does not go unnoticed by parents. We trust you to nurture our children, even those who learn differently.

Parents, you are the true champions. Fighting for your children’s right to quality education is no small feat, and you should not have to do it alone. Ensure that your voices are heard by your school districts, counties, and the state. Every child deserves the opportunity to learn and grow.

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Summary

The pandemic has disproportionately affected families with children who have disabilities, highlighting existing gaps in educational resources and support. With inadequate federal funding for special education, parents are left to fight for their children’s right to a quality education. Advocacy for better funding and resources is essential to ensure that all children, regardless of their learning needs, can thrive.