I Was Diagnosed With Scoliosis as a Child: What Parents Should Understand

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Scoliosis. For many, this term can evoke fear. Often, it’s the first word heard in a medical context, leading to uncertainty. My own journey with scoliosis began in 1997 when my cardiologist detected a curve in my neck—the first of two curves later confirmed by an orthopedist. So, what exactly is scoliosis, and how does it specifically impact teenagers and adolescents? Here’s what parents need to understand about this prevalent condition.

What is Scoliosis?

Scoliosis is a widely recognized medical condition affecting millions annually. According to Kids Health, it involves a curvature of the spine. Rather than being straight, the spine twists or bends, leading to various potential health issues depending on the severity of the curve.

What are the Symptoms?

Most individuals with scoliosis are unaware they have it, as the condition often presents few symptoms. Some may experience mild aches in their back or neck. The Mayo Clinic notes that signs can include uneven shoulders, an asymmetrical waist, one hip sitting higher than the other, or a shoulder blade that protrudes more prominently.

What Causes Scoliosis?

The precise cause of scoliosis remains a mystery. The Mayo Clinic explains that doctors are still unsure about its origins. Genetics may play a role, as noted by Dr. Alan Thompson, a pediatric orthopedic specialist. “When parents hear that scoliosis can run in families, they often reply, ‘But no one in our family has it,’” he states. “However, it’s possible that someone did, and it was simply overlooked due to its mild nature.”

Can Scoliosis Be Prevented?

Since the cause of scoliosis is still unknown, there is currently no way to prevent it. Parents should understand that if their child is diagnosed, it’s not a reflection of their actions. Dr. Thompson emphasizes that it’s a unique condition without a known cause or preventive measures.

How is Scoliosis Diagnosed?

Scoliosis is typically identified during routine pediatric examinations, such as the Adams forward bending test. In this assessment, children may need to remove their shirts to allow for a clear view of the spine while bending forward. If scoliosis is suspected, X-rays will be ordered to evaluate the severity of the curve, and an MRI may be necessary if an underlying cause is suspected or if surgery is needed.

How is Scoliosis Treated?

Treatment varies significantly from person to person. Most cases of scoliosis require minimal to no medical intervention. According to Raising Kids, children with mild scoliosis typically need regular monitoring, usually involving X-rays every four to six months. Moderate cases may require physical therapy or bracing, while severe cases could necessitate surgery, though this is uncommon. “Many patients worry they will need treatment, but only about 30 percent require bracing, and an even smaller percentage—around 10 percent—actually need surgery,” Dr. Thompson reassures. “Scoliosis is highly manageable, especially with early diagnosis.”

Regardless of when it is diagnosed or the treatment approach taken, the prognosis for scoliosis patients is generally positive. I underwent surgery in 1999, receiving a rod and screws in my spine, yet I am in excellent shape. I engage in weightlifting, yoga, and run marathons—my limitations are minimal. Most patients experience similar outcomes.

“Learning that your child has scoliosis can be challenging. Parents often worry about how it will affect their child compared to peers or whether they will still engage in typical activities,” an article on Spine Universe notes. However, with early diagnosis and a strong support system, children can continue to lead fulfilling lives without being hindered by scoliosis.

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Summary:

Scoliosis is a common condition that can be alarming for parents when diagnosed in their children. Understanding its nature, symptoms, causes, and treatment options is vital. Most cases are manageable, and early detection plays a crucial role in ensuring a positive outcome for affected individuals.