I observe children at the park, joyfully running and laughing together, sharing stories as their parents chat about milestones and plan coffee outings. But my reality is quite different. I often find myself alone, sipping coffee by myself, consumed with thoughts of upcoming therapy sessions and tracking my son’s health needs. I’m the mom who quietly monitors his bowel movements and organizes blood tests, while feeling disconnected from the other parents who might not grasp the complexities of my life.
Every mother faces her own battles—encouraging kids to tidy up, managing sass, and juggling endless to-do lists. I understand that. But as a special needs parent, my challenges feel uniquely intense. I am the one deciphering the triggers behind my son’s meltdowns, meticulously recording data to identify patterns in his behavior. I constantly worry about his safety, preventing him from darting into traffic, as he lacks an awareness of danger.
I balance therapy sessions and medical appointments, advocate relentlessly, and lose sleep over what the future holds. I ponder who will care for him when I’m no longer around, and I wonder if I will ever hear him say “mama” again. I fight for acceptance in a world that can sometimes feel unkind, and I harbor resentment toward those who judge without understanding.
I wish life were easier for my son. I long for friends to remain present in my life and family to show more compassion. There are nights when the tears flow freely, yet my love for my son remains unwavering. He embraces life with a joyful spirit, unbothered by opinions. I adore his carefree dance moves, infectious laughter, and the warmth of his hugs. He is a delightful little boy who loves music, cupcakes, swinging, and playing outside.
Autism presents challenges, but it doesn’t define who my son is. He is kind, funny, and sweet, and I cherish him for who he is.
For more insights, check out this post about parenting and the challenges we face. If you’re looking for expert advice, this site is a great resource. And for those navigating pregnancy, March of Dimes offers wonderful information.
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- Parenting a child with autism
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In summary, while autism shapes my experience as a mother, it does not define my son. I embrace his unique qualities and the joy he brings to my life.