Updated: Dec. 6, 2017
Originally Published: Dec. 5, 2017
It’s remarkable how a single day can transform your life. In my 33 years, I’ve experienced several pivotal moments, but none have been as life-altering as the day I was diagnosed with scoliosis.
You might be curious about why this diagnosis was so significant. Scoliosis is relatively common, particularly among young boys and preteen girls. The American Association of Neurological Services estimates that approximately 3% of the population is affected, with most cases being treatable or benign. In many instances, spinal curvatures can self-correct as one grows.
However, my situation was different. My curvature wasn’t mild or typical; I had multiple curves, including a prominent one in my lower back. I was faced with a severe 60-degree lumbar curve, which could only be addressed in two ways: wearing a back brace or undergoing surgery. Both options were daunting, to say the least. Surgery is intimidating, and the thought of a back brace was equally unsettling. Ultimately, since surgery was deemed a “last resort,” my mother and I opted for the brace. My body was molded and encased in a hard plastic shell that extended from my underarms down to my abdomen.
The brace came with three large Velcro straps that I had to manage to put it on and take it off. It was designed to apply pressure on my body to restrict movement, which meant it was painful and uncomfortable. Unfortunately, instead of improving, my condition worsened; my curve progressed to over 70 degrees. My doctor then recommended an extensive 8-hour surgery to support and fuse my spine.
At just 15 years old, I underwent the procedure, which involved the insertion of five screws and a metal rod into my back. Unlike the brace, the surgery was effective. However, even after the successful treatment, I still live with the repercussions of scoliosis. Eighteen years later, the pain from my surgery persists. It’s a chronic condition that won’t simply disappear.
The residual effects of my deformity are undeniable. I experience localized pain and swelling, and on certain days, even simple activities like walking, sitting, or standing can be excruciating. Some days, I find it difficult to get out of bed. Due to my scoliosis and spinal fusion, I can’t do exercises like sit-ups or various acrobatic movements, and I occasionally trip because one leg is shorter than the other.
Yet, the hardest aspect of living with scoliosis is not the physical pain; it’s the emotional toll it takes. Growing up with a visible deformity subjected me to mockery and bullying during my formative years. Those experiences left scars far deeper than the 16-inch surgical mark along my ribcage. I still grapple with feelings of inadequacy and self-consciousness, often avoiding eye contact with others as I strive to blend in.
That said, scoliosis is not entirely negative. It’s important to recognize that, regardless of its impact on your life, scoliosis is not a terminal condition. With appropriate care and rehabilitation, it can be managed. While the journey may be challenging, living with scoliosis can also lead to personal growth. For me, my condition pushed me towards an active lifestyle; I lift weights, practice yoga, cycle, hike, and run. I participate in 5ks, 10ks, and half marathons, reminding myself that I am capable and strong.
On the road, I discovered resilience and confidence. Life with scoliosis remains difficult, both physically and emotionally, but I continue to move forward. I am more than my diagnosis, and so are you.
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In summary, while living with scoliosis presents unique challenges, it can also foster resilience, strength, and personal growth.