When your dad called to share the news that your brother had Down syndrome, time seemed to freeze. The phone slipped from my hand as I sank to the floor, overwhelmed by disbelief. My initial thoughts were a frantic “Oh no, this can’t be happening!” followed quickly by concern for you, my sweet girl.
For 16 months, you were my entire world. I genuinely cherished every moment with you—well, except for those teething nights! I tried to savor the everyday joys: your laughter, our peek-a-boo games, and the countless times we read the same story. But after learning about your brother’s diagnosis, my focus shifted from enjoying the present to worrying about the future.
I found myself fretting over your teenage years. What if kids teased you for having a brother who was different? Would I become so consumed by his needs that I’d overlook yours? It felt incredibly unfair to you. What I didn’t realize in those early days was how enriching this journey would be for you.
I’ve since learned that 97% of children with a sibling who has Down syndrome feel proud of their brother or sister, and an impressive 88% believe that having a sibling with DS makes them better individuals. This is my hope for you, Emily.
When you see Noah striving to achieve what comes easily to you, I hope you develop a sense of humility. I wish for you to reflect on your brother when you find yourself judging others based on appearances. And when life’s trivial annoyances arise, I hope you cultivate gratitude for your many blessings.
I want you both to learn to appreciate life—to find joy in the little things and to embrace love wholeheartedly. While your maturity may outpace that of your peers, I see it as a gift. I hope your brother inspires you to rise above youthful superficialities and encourages you to pursue your passions with courage. He can help you recognize the broader world and the needs beyond your immediate surroundings.
So, I’m not regretting your brother’s diagnosis anymore. I find it to be a blessing. You’re gaining insights that many will overlook. Popularity, flashy cars, and superficial beauty won’t define you; what truly matters is your capacity to love others.
As Galatians 5:6 reminds us, “The only thing that counts is faith expressing itself through love.”
With all my love,
Mom
P.S. Noah is incredibly lucky to have you as his sister. You’re kind-hearted like your dad and spirited like me. I know you will be one of his greatest teachers, protectors, and friends.
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Summary: This heartfelt letter highlights a mother’s journey of acceptance and growth after learning her son has Down syndrome. She reflects on her initial fears for her daughter but ultimately embraces the positive impact of the diagnosis on their lives. The message emphasizes love, gratitude, and the importance of seeing beyond societal expectations.